Sunday, 10-10-2021
It's better with walking and shortness of breath, but it doesn't stop. I keep moving and trying to do something in my household, like the laundry and dishes and things like that. The vacuum cleaner is ready until I find the courage to use it. It succeeds in part. A small piece of living room sucked. But I'm a bit done with it because of that pain.
I'm trying to figure out how to describe the pain and suddenly I know.
It feels like acidification of your muscles when you exercise intensively. But then continually in my case. Except when I sit or lie on my buttocks. 🤭
Monday I have to prick blood and actually don't want help. That means I'm going to cycle to hospital. Or at least take a try.
And so I thought I could practice before tomorrow and go cycling to the hospital today and see how it goes. So said, so done. And that went pretty well. Provided bike engine is in highest position. It's an unwise pain, but I made it. And when I got off and had to walk, I noticed that there's my biggest problem.
Now of course I have to walk from the hospital entrance to blood collection.
I'll see how I'm doing tomorrow. Even if I have to go there crawling.
chemo

Monday 11-10-2021
I want to confirm my blood collection appointment digitally and I see to my great shock that an appointment has also been scheduled with the oncologist, right after blood sampling.
YEUY, I'm not going to make it all on foot. I did have a phone appointment with him, but apparently my concerns ended up with the oncologist through oncologist nurse where I was last Friday.
My head is banging. HOW?
Maybe just ask a hospital hostess if she wants to push me ff into a cart like that.
Yes, I'm going to. Fixed an issue.
And then my phone went. Oncologist on the Phone. (so anyway)
Blood that I had taken off on Thursday was once again very fine. How does my body do that? My god, I'm not so messy at all so, as I call out regularly. 😉
He says cure 5 can start tomorrow. (So I don't have to go to the hospital to prick blood. Joepieee)
I ask him if that's smart with the current problems, because I can barely walk.
He shifts quickly (he might have been able to ask for my state of dissolution for careful care.?) and says I'm only getting immune therapy and he's going to take the chenezing off.
Now I'm worried about cure 6. Ask him if I should start course 6 in three weeks now that chenezing is taken off.?
No, he says. We'll look at that again after the MRI.
Okay, clear.

Tuesday, 12/10/2021
I still can't walk well, but I do notice that the weather is going a bit better than yesterday.
Short day at the drip today. 1.5 hours at most. That makes me happy again.
Dinner of 4 houses is going to bring me and pick me up. For safety and security. Normally I go by car myself. No, not by bike, because I think that's a bit too wobbly with that sleepwear in my body.
After 1.5 hours I get disconnected and could go home. Were it not that I brought another side effect, itch, to the spotlight again.
A doctor ? walked in the department and the nurse asked if I wanted to wait for that so I can discuss this complaint.
But that could take a while. And we won't talk about minutes.
Um. okay. um, do I want?
You know what, she says. Go to lunch here first and we'll see how far the doctor is and how long it takes.
Good plan, I say.


At lunch, she says I can go home after that.
Oh, why that? Not seen a doctor yet.
He can't help you, so we made an appointment with the dermatologist. You can go there Friday.
TOP !! Resolved.

But then came the most fun announcement. And I'm smelly happy again and bounce around my house.

So today was suddenly the last day of the cures. (again, provided MRI also shows that tumor is gone) I was no longer sure if this was the last day of spa. Remember vaguely the oncologist told me yesterday.
I am free until October 28th (MRI)
Finally, my body can recover a bit from this medication violence!!
My hair can continue to grow and maybe I'll get back my taste, saliva, earwax and everything that was normal.
I can't wait !!!!!
   chemo


Friday, October 15, 2021
Finally to the dermatologist. The itch is pretty untenable by now. It makes me sleep badly or wake up from the itch. And scratching doesn't help because it's itching from the inside and scratching only makes it worse. But really a solution I don't have how to deal with it differently. So come on with that ointment that removes the itch. They're making another skin biopsy and Friday October 29th I get the results. Ointment prescribed which is unfortunately not available until Monday. Potsie three. 2 more days in that misery. But I have no choice and will have to accept it.

Sunday, October 24, 2021
My itch frustration is huge. My tiredness is pretty much like the chenezing and I function fairly normally in terms of fatigue, but the broken nights of the itch make me sick.
It's a different tiredness than that of the chenezing. A tiredness you have too. Not exhausted, half dead or elderly 🤪

I don't know effe how to fix it and my mood goes down. It's so painful that itch. It stings, burns and itches. In my despair, I remember that I should take care of distractions. Well, I know plenty of distraction. 😋 I'll go into the kitchen and make a better layout in the kitchen cabinets. I also want to get off that drainer on my kitchen counter, so come up with that too. I come up with ideas, but my muscles don't really work with yet. It's been better than 2 weeks ago, but I'm definitely not there yet.
I wanted to take care of the whole kitchen, they've become two kitchen cabinets and. a countertop without drainer. It can now be in a kitchen cupboard. Met I step in the shower.

Monday, October 25, 2021
Just didn't sleep tonight. not! Okay, 2 hours. KAPUTT
Today I want to surprise a friend at the Anthonie van Leeuwenhoek Hospital, who was also diagnosed with breast cancer six weeks ago.
She doesn't know I'm coming and I still want to go to Amsterdam despite my fatigue. Even if it's just an hour. And how glad I went.
So nice to see her, because she lives in the south of the country, and who knows when I see her again, because a trip to Brabant isn't there yet for me. And of course she can't come to me as her chenezing starts.

Once back home, falling asleep like a block. What a breath of fresh air. not feeling itching.

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