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FNH (Focale Nodulaire Hyperplasie) | Derpy
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FNH (Focale Nodulaire Hyperplasie)

Derpy
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7 min read · 23 Oct 2020 · 637 · 7 · 8
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8 comments
denicestrijkveen
denicestrijkveen
2 years ago
I have exactly the same story! Also hospital in hospital from ultrasound and then the news, you have an abnormality in your liver of 7 by 8 cm, your life is turned upside down. After the 1st scan they were not quite sure. 2 scan, no good contrast medium had... Show moreI have exactly the same story! Also hospital in hospital from ultrasound and then the news, you have an abnormality in your liver of 7 by 8 cm, your life is turned upside down. After the 1st scan they were not quite sure. 2 scan, no good contrast medium had been used, so they said it was FNH but they wanted to take another look just to be sure. After this scan, I was indeed told that it was FNH. But in the time of the scans, it had grown and that could not be possible, the doctor told me. My scans were sent to Groningen, she thought they knew more about it. And yes, they said 1 in so many people with FNH have a growing FNH. It had already grown 2 cm in a few weeks. But they couldn't do anything about it,” she said. I didn't have to come annually to check if I have to vomit, then I have to come, so it can press on other organs. Well, of course, you are not very relieved, but what else can you do?
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Encaustichris
Encaustichris
4 years ago
Nooit van gehoord, jouw Karel dus... de scans wel, al klinkt die van jou wel erg comfortabel 😉. Ik wens je een spoedig Karel-vrij leven!
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Diana
Diana
4 years ago
Jee zeg wat een verhaal. Wat zul je geschrokken zijn. kan het me levendig voorstellen de naam inderdaad klinkt... Show moreJee zeg wat een verhaal. Wat zul je geschrokken zijn. kan het me levendig voorstellen de naam inderdaad klinkt
heftig. hormonale goedaardige Lever tumor. gelukkig zit het woord goedaardig erin dat klinkt dan weer positief. Ik had zelf nog nooit van het woord gehoord . Goed dat je her over wilt schrijven en je verhaal wil delen. Ben benieuwd of andere leden het wel kennen?
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Myranda
Myranda
4 years ago
Wat een heftige ontdekking! Ik had er nog nooit van gehoord.
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Dana
Dana
4 years ago
Nee, nog nooit van gehoord en gelezen. Echos en MRI scans ken ik wel. Deze zou inderdaad beslist niet misstaan in #hoegaikommet . Ik denk dat er meer mensen benieuwd zijn naar hoe jij verder omgaat met Karel. Geweldig idee om je ziekte een naam te geven. Dat... Show moreNee, nog nooit van gehoord en gelezen. Echos en MRI scans ken ik wel. Deze zou inderdaad beslist niet misstaan in #hoegaikommet . Ik denk dat er meer mensen benieuwd zijn naar hoe jij verder omgaat met Karel. Geweldig idee om je ziekte een naam te geven. Dat maakt het persoonlijker, dat maakt het eigener. Super! Dank voor het delen van je verhaal!
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Ingrid
Ingrid
4 years ago
Goed dat je erover schrijft. Het is voor het eerst dat ik er iets over lees... Hoop dat je er snel geen last meer van hebt. Tip: doe met deze post eventueel mee in de pool #hoegaikommet (dan wel die hashtag toevoegen aan de post).
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Just read(en)
Just read(en)
4 years ago
Its great to hear about your experience. Luckily it was just a benign and hope you have recovered fully. My best wishes for you. Keep writing and sharing.
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