This is Peter my husband for 7 yrs 8 months and 1 day.
My husband is 44 years old and I am 34 years young 😂.
Peter has an innate condition called Neurofibromatosis.
Neurofibromatosis type 1 (NF1) is a hereditary condition. The cause is a glitch in a gene. You'll be born with NF1. NF1 almost always gives you neurofibroids. That's benign neoplasms. These can occur in different areas in and around the body. What characteristics and how many complaints a person with NF1 has varies from person to person.
If you look up this disease on the internet, you will also see the worst cases.
Peter doesn't have a lot of these growths yet. He has also had a lot of it removed over the years. And there are a lot of scars on his body.
But this is Peter, I don't know him otherwise.

How I stand in this as his wife.
I knew Peter before I had a relationship with him. And knew he had a disease, but what kind of illness I didn't know. Never asked him after. He was Peter. as peter peter is. Before our relationship, I got along with him very well. we were always thundering. but were also able to have very serious conversations. But never really talked about his illness. I just really didn't wonder what it was or what it was. then it dated his relationship and joined my mom and stepdad. I had just left my boyfriend and just lived with my mom.
We decided to go to the fair with his 4th. And when we got back home, my mom asked, Can't you spend a night out?
Of course, they wanted a moment for their self. what I understood well. So you grabbed my bag and was just about to get in until my mom was suddenly in the door waving my pill strip. (oops shame moment).
Caught them and went home with peter. Wanted to lie down on the couch and Peter said I have a double bed and can really keep my hands at home.! Well okay then.! uhmm tja Keeping the hands at home hadn't succeeded (whahaha). And when I woke up the next morning. Peter asked me if I wasn't wondering what he had.? Well, sure I want to know more about it and wonder what it is. But I thought if he needs to tell me, he'll come himself.
Well, that was the beginning of a whole story and explaining how and what and why. I joined Peter because he: Sweet, Funny, Beautiful for who he is. One in my eyes a special man with a golden heart. And then that disease doesn't matter anymore.
Have informed if it was wise to take children with his illness. this could but then they had to take out the wrong gene and so I put a lot of hormone syringe. And then only 25% chance of pregnancy. Then the decision was fixed with us. We don't take/get kids . Need to process this together. We are at peace with it now.
And when I look at the time we're in, I still think this is a wise decision.
We enjoy everything! Going to the sauna. (yes Peter too).
which I have a lot of respect for. He never did this before my time, Peter didn't even dare to go to a pool.! Slowly I could tell him he was enjoying and letting go of his illness little by little. He accepted himself as he is. Sure it's a bit tricky. Especially when you're stared at!
But I find you are there for yourself and always say you have a wife. and many men can't even say that even without an illness. And what captivates what another person thinks or says. If they have questions, they ask, right?. When we are in the sauna or nudist beach and they check it out, I always ask isn't he unique?.

This was the story of my husband & i.
If you have questions about his illness or anything else, feel free to ask them.
M.v.g Diana & Peter

#affliction
#forgottenillnesses
#hereditarydiseases  
#unease