Pfff

What a Sunday. continuous nose glasses with oxygen (air filter). Partly because I need it, partly because I don't have enough oxygen bottles anymore and can't be delivered until Thursday. I see up against the next few days. Switching diaper immediately in bed, because getting out of bed, in the scooter, where then the clean diaper is already in too much energy and so

For a few days there has been little wind, no matter how many windows and doors I open against each other. This also leads to 'bad air' (smog) from the vultures linger. That is a disadvantage if you live in the polder. at the pulmonologist for this Tuesday will have to be canceled again, because I have no small (transport) oxygen bottles either. 

So it's not easy, but try to keep as much as possible my regular routine. Fortunately, those nose glasses do give lighting and I don't breathe all the time, which is also very tiring. Especially at such moments I try to distract myself and write a lot, as you have noticed in the past few days. The question of how long I can (and want to) keep this up again comes to the surface.

Now I am a fighter and I just want to go to a specialist once, to see if there are any possibilities. There are a few things that I think are not entirely right and I would like to answer that. I'm not having to take these measures.

Now, after posting this blog, I'm going to push myself to change myself, so I'm going to do it for