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Maximus-minimus
15 followers • Joined 13 Aug, 2020
Hoe ga je om met meervoudige aandoeningen op een nog redelijk jonge leeftijd. Hoe zorg je goed voor jezelf, je gezin, omgeving én draag je een steentje bij aan de wereld.
Over die zoektocht schrijf ik hier.
Maximaal leven met minimale energie.
Maximus minimus dus
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Als dingen weer "moeten" worden.
Maximus-minimus
2 days ago
Ondanks dat ik (uiteraard) nog steeds chronisch ziek ben en af en aan nog wat milde covid-19 terug vallen heb die gelukkig steeds milder en minder voorkomen gaat het goed met me. Enig nadeel daarvan is dat ik weer dreig terug te vallen in mijn eeuwenoude gedrag van nog even doordauwen. Nog even dit, nog even dat en geen rust nemen, ondanks dat ik erg moe ben. Zo ook vandaag ben ik best moe, kwam s...
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Lex onze impuls geelvoorhoofd amazone
Maximus-minimus
2 months ago
Op 17 juni 2013 kwam het gesprek wederom op het nemen van een papegaai. We hadden een zware periode achter de rug, dus doe maar en op 18 juni 2013 hadden wij Lex een geel voorhoofd amazone van toen 7 á 8 weken gekocht. Ik wist echt helemaal niets over papegaaien, niet eens dat ze konden bijten. Pas thuis realiseerde ik me de gevolgen van het houden van een papegaai in grondbeginsel. Nooit meer zo...
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Later when I grow up...
Maximus-minimus
3 months ago
What a special year we've had on it. I really did not want to miss it despite all the personal misery and 2 times covid-19 of which 1x really positive tested. The first time, there was no testing. I didn't have a fever then, and I thought my lung condition had gotten worse. However, when the test came back with positive 1 November I was sure, so I had it in March 2020 as well. The first time was m...
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Life update after covid-19
Maximus-minimus
3 months ago
It's been over a month since I last wrote here and I can report that we are doing well. Marco has been working full time for 2 days in a row. He's now on 3 weeks vacation, but he's on emergency duty, so he'll be gone occasionally. I was faster than him on my old energy value and generally feel good. Sometimes still suffer from headaches and stuffiness. The veins on my chest are therefore very well...
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And then... covid-19
Maximus-minimus
5 months ago
And then. . . . I woke up Saturday 31 October with a feeling of a kind never before experienced cold virus or flu. I was bummed like a plug, because an ordinary flu can also be life dangerous for me.. For example, more than 5 years ago I was in the hospital with extra hydrocortisone and extra oxygen. My husband also felt “flu-like”. Sunday November 1st we went to search on Google what to do be...
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It falls, but not easy # life update
Maximus-minimus
5 months ago
Where I have enjoyed writing here on yoo.rs I just haven't been able to do that lately. I would have liked to keep you informed about the kitchen remodeling, but everything was against. 1 step forward, 2 backwards and that for a month. I was stiff with the stress that at some point I was even afraid that I would not even be able to enjoy it anymore, because how long does my body last? The deepest ...
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10 trip card GP and Lipoedeem
Maximus-minimus
6 months ago
This morning the GP called for a double appointment, but due to corona the GP called me back later to see if it was possible by phone or if I had to come by. 2 weeks ago I got a syringe in my right shoulder, because I have a bursa inflammation. The spiet does something, because I can lie back normally at night, but it is absolutely not over and I felt some rumble on the left. It's not very extreme...
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Hooray a new kitchen NOT #003
Maximus-minimus
6 months ago
Last year on my birthday (October 2, 2019) we went to the kitchen company to look at a new kitchen. The one in the picture we found the most beautiful. With us the layout will be different, but then it will give you an idea. A few weeks later they measured the kitchen and after a reflection period of 2 months we had a new conversation to make it final. I would have preferred of course right the ne...
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Hooray a new kitchen NOT #002
Maximus-minimus
6 months ago
Earlier, I wrote about our kitchen drama. We live in an apartment building and are insured for the bare walls through the Owners' Association. Everything you put in your home such as a new bathroom, kitchen, floors you have to insure yourself extra. We have done that and have already paid 25 years to it, but now it turned out to be a problem when we called to report the damage we would not be insu...
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Increased pain during lymphatic drainage therapy
Maximus-minimus
6 months ago
This morning I went back to lymphatic drainage therapy. A few months ago there was a thick lump on the inside just below my left knee. Right also slightly, but on the right I have lymphoid edema, so I didn't think that was so weird. I also went to the GP who suggested to increase the lymphatic drainage therapy from once every 6 weeks to every week and to look at it. However, I had a pulling and bu...
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Hooray a new kitchen NOT #001
Maximus-minimus
6 months ago
Right now we're in the middle of a kitchen remodeling and look back from beginning to now. On August 8, 2019 I wake up and I thought: how hard it is raining. If I let my bed get out and walk down the hall I'm in the water. The sound of rain does not come from the outside, but from the kitchen. I know where the main faucet is, so kitchen cabinet is empty and faucet closed. Marco called and luckily ...
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Holiday (part 5) home via the bird doctor
Maximus-minimus
6 months ago
Friday 25 September At 9:00 we already closed the door of our holiday home, because at 11:00 for our 3 parrots we had an appointment with Nico and Yvonne of the University Cliniek voor Socischapsdieren in Utrecht and better too early than too late. Much too early, so on the way stopped and also early in Utrecht and after questions we were allowed to unload them. Mika and Eva went with me, and Lex ...
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Telephone appointment with the internist
Maximus-minimus
6 months ago
As long as I can remember I have to go to the hospital at least 1 to 2 per year to check for my congenital pituitary disease Panhypopituitarism . Because of corona this became a telephone appointment and where my preference goes to real life I didn't mind in this case. I have a very nice internist and she really took the time for me. Besides, I could now read all my questions off my list and write...
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It's my birthday 🥳
Maximus-minimus
6 months ago
Today I turned 46. What an age and how happy I am, despite everything, that I am still there, the way I am. It's certainly not always easy, but I keep going and look positively towards the future. I haven't been celebrating in years and don't miss it. In addition, we are in the middle of a kitchen remodeling and also with corona everything is just different. #Verjaardag
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Holidays (part 4)
Maximus-minimus
6 months ago
Thursday, September 24th. Because the weather had been so bad we had 3 busy holiday days behind us and decided to take a rest day. Also to build up the car and pack some stuff, because the next day at 11:00 we would be expected to drive more than one hour in the University Cliniek voor Gezelschapsdieren in Utrecht. In preparation for the holiday we always say to our parrots; so many nights sleep a...
Holidays (part3)
Maximus-minimus
6 months ago
Wednesday 23 September Over the past week, Mika's been picking. Now Mika is a rosé cockatoo and like everything she can do quite fanatical, so it looked pretty heavy. That's why we called the University Clinic for Pets this morning. They are our regular clinic and were allowed to come with Mika on Friday 25 September. However, she is not sick and also the harness does not seem to give any problem...
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Holidays (part 2)
Maximus-minimus
6 months ago
Tuesday 22 September, The weather was beautiful again and this day we decided to go to Giethoorn. The Venice of the far north. It's funny that my husband said that we went here for the parrots, because we went to Venice twice. Personally, I had never been to Giethoorn before and actually this is one of those Dutch things you should have just been to. Usually it's very busy there, but now with coro...
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Holidays (part 1)
Maximus-minimus
6 months ago
On Monday 21 September I left with my husband and 3 birds in our Citroën Berlingo for a midweek to Landal Landgoed't Loo. The weather was good for us, but because it could turn around that week we decided to get everything out of it and to visit Elburg first before we later that afternoon would drive to't Loo. This is something we never do and will not soon do in the future. It takes too much ene...
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De Strait Bieb a nice initiative
Maximus-minimus
6 months ago
Do you have a lot of books that you don't do anything with anymore and maybe even stand in the way. No desire to sell or go to the cycle then the street library is a super initiative. I know that a number of years have already been one a few hundred meters was down the road. That was the first in the wide area and what did I find That's nice. Quite honestly, I try to sell my books first, so that I...
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That wasn't exactly nice
Maximus-minimus
6 months ago
Do you recognize that you sometimes say something that you later don't think was really nice? But is it really true? Isn't it us? conception of what judges our action hard at such times? I think everyone agrees that later you think something isn't was really nice. I myself think I am such an unkind person, but because I once say something unnice makes with that not immediately an unkind person. In...
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Echo rash.
Maximus-minimus
6 months ago
This morning, I had lymphatic drainage therapy again. The bulge under my knee is still the same size. The burning pain is worse than the other one time. On the way home, the assistant of the general practitioner called with the results of the ultrasound. There's clearly a swelling visible, but nothing to worry about. Just continue the lymphatic drainage therapy and look at it for a few weeks. For ...
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No rash from the ultrasound of my knee
Maximus-minimus
6 months ago
Yesterday I got to get an ultrasound at the hospital of my left knee. On the inside just below my knee there's been a bulge for several weeks. That lump doesn't really hurt, but for a few days I have a burning pain in my popliteal fossa up to my buttock and shooting pains in my thigh and thigh. This is mainly on the left side, but also on the right I have slightly that burning pain. Right is my ly...
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I've been to the GP third week in a row.
Maximus-minimus
6 months ago
For a few days I had a burning pain in my mainly left popliteal fossa, but well above where my compression stockings are. I sometimes have it that the silicone edge feels a bit pinching and itchy and then I smear with Aloe Vera. Yes, officially that is not allowed, but it softens and the compression stockings stay well with it. Yeah, I've tried body lotion once, but then my compression stockings g...
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No lymphedema, right?
Maximus-minimus
7 months ago
I went to the physiotherapist this morning for lymphatic drainage therapy. I've had lymphatic edema on my right lower leg for almost 9 years. I wear compression stockings for that after a long time had been waited then and now I had about once every 6 weeks of lymphatic drainage therapy. For about six weeks, I've had a bump just below my left knee on the inside. On the right he also sees, but a lo...
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