It's been a while since I logged in. I'm lacking energy, inspiration or whatever.
And you still have some info credit. My inbox is jam-packed with sweet responses and I don't know where to start replying it.
So I'll just start writing.

Adding to my previous blog about breast cancer ( Hassle 19-02-2022 ) that I had a lot of sanding when it came to radiation and immune therapy.
Read studies in various languages and it just stayed with investigations. I wasn't comfortable with it. I'm clean and clean is clean, just.
On 1 March I had an appointment with the oncologist. My questionnaire with me nicely, but actually my most important question was:
What does radiation add to immune therapy in my situation. (irradiation is local and immune covers the whole body. Both in their own way, of course)
Without me even starting about research phase, he himself started about that. After that, when I told him that I had read various studies, in Dutch and other languages, it is not clear at all what the two treatments mean for each other and therefore what results it produces and that I am not a research model or a revenue model for cancer !
Is it standard?, I asked him.
Yes, it's standard, but I totally understand you don't want it. And I also expect you don't need it. But it's not my specialty, so put it to the radiologist.

I had canceled that appointment the next day, but because I didn't want irradiation.
A new date did come in and that was on 11 March. I wanted to cancel that too, but the lady on the phone said that it might be smart to go after all. Then I would have heard all sides and I was able to make a good decision.
Well, there she made a point. And I figured out; then I closed the file for the ornamental. At the same time, actually curious what the radiologist would say.
My 'no' is usually also called 'no'. And in this situation, you really had to come from a good house to make it a 'yes'.

Long story short:
It is standard procedure, based on a study based, according to radiologist, from at least 10 years ago. 10 years !!!!!!!
In the meantime, cancer medication has progressed enormously. (I know this from my oncologist again)
When she said that, of course, I gave her a little attention to it and that I hate that the patient is not being looked at. It's about me, Marion. I don't want to be research number. (which I am now of course, because I don't have the irradiation 😉)
I, who reacts so incredibly well to the medication and then still irradiation with more than 5 months to go with immune therapy, which I do support.
Actually, we were talking out.
But 'en passer' she told me for a while (apparently that should have convinced me), that my whole breast would be irradiated, but with a mild irradiation.
That says enough about the fact that I'm healed and they have no idea what to irradiate on.
No question!
I'm not talking about the side effects of irradiation have, but they can be terrible. And I already have enough of the side effects of chemo- and immune therapy, to cope.
In addition, the surgeon's words went through my thoughts, in addition to those of the oncologist. She indicated, when I got something out of the results about my sentinel gland did not understand, that when you heal quickly, this gland is no longer visible. So. clean is clean.

In short, I walked out the door there without agreeing to irradiation. Ik ben geen verdienmodel, gebaseerd op een (volgens radioloog) afgerond onderzoek van minimaal 10 years geleden.

I'm going to regret if I get cancer again, now that I don't take radiation?
No, because it's totally unclear, if not proven, that I could get cancer again because I didn't have radiation.
It's coffee grounds watching. I'm not up to this challenge !!
It even makes me angry and sad.
Tailor-made care I expected /hoped !!
my cancer is not a revenue model (I say very carefully)
 
 

#breastcancer #cancers #earnmodel #radiolology #radiationbreastcancer #think #oncologist #bestraling

 
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