19-02-2022... Diagnosis Breast Cancer - Hassle?
Well, Yoors is going to get my honors, comments and dots and I get the most wanted responses in my inbox from Yoors, so first an update then instead of. read with you. 😉
With a nice glass of wine before my snooping, I'm going to bring you back to the loop. In the end, the hospital record states that I drink less than 2 glasses a day of alcohol. Drink rarely, and find this information from the hospital a bit generously measured. But I don't think it's a problem to comply with it either 🤣
The days after my surgery were painless. I didn't quite expect that, but glad I could do what I wanted. Pay a little attention to lifting with my right arm, but I also let go of that quickly. My cat had broken the blanket and it had to be really fast in the wash to prevent stains. Now my washing machine is in the basement and I can only reach it via a heavy hatch in the kitchen. You get it already. The laundry done.
In addition, I suddenly had a completely different problem on Sunday. Now Eunice is living out, but last weekend it was already ball. Heavy rains and promptly it started to leak in my living room. Yes, um. and now? That meant up the roof. Although a flat roof, but still. I also had to go up the neighbor's roof. So that meant moving the heavy telescopic ladder via a 3 step step and moving a few meters to clean my entire gutter and his, because I suspected that my rain gutter had filled up.
The job done in weather and cold wind. No, I'm not a tough one (well, maybe), but most of all a practical. Sure I could have asked someone but I wasn't in pain, dussssssss. Do I do it myself.
Exit leakage to date.
And yes, sorry, but then I feel like a happy person, that I can just do all this. And yes, I'm 'scolded' by my friends, and I would have done it with them too, but yes, I'm Marion. And I'm stubborn. Try first and if I really can't do it, I'll ask for help.
Meanwhile, we slid towards Wednesday. Breast tissue rash.
Now I won't be named Marion, if I hadn't read my file in advance. Now I am also not aware of the terms, but 'no rest invasive carcinoma 'I understand extremely well. In other words, I'm cleaner than clean. Away cancer. Away tumor. Gone stuff.
Oh wait. erm, there's stuff.
The aftertreatment!
What my oncologist had failed to say for a moment is that I am still receiving immune therapy. The surgeon knew to tell me that in December (see previous blog)
With her result last Wednesday, this immune therapy appears to last a year in total. Now I started sometime in July, so will also stop sometime in July this year. prima. I understand that as a post-treatment. To prevent 'wandering' cancer cells in the rest of my body from causing problems and being addressed by this therapy as much as possible.
But now, my hassle.
Immune therapy tackles any cancer cells throughout my body.
But what has been known from the beginning of my process is that I also receive radiation as a post-treatment.
And all of a sudden, it went to my head.
Irradiation is local to destroy any cancer cells. But also my good cells. They do recover again, but that results in fatigue and any other problems of irradiation.
I still have plenty to deal with over the past period of side effects.
So put a bomb on questions to her about irradiation. But I probably didn't ask the right questions. I only got it when I woke up the next morning and my resistance was enormous.
Why both treatments? She explained it and yet suddenly it's shaking again. In fact, I don't want more. That says everything about me and nothing about the surgeon's explanation.
But I did come to the conclusion and so did my girlfriend, that it's actually just protocol and they always do it that way.
But I'm not a breast cancer patient in general. I would like to make customized care. Do I need both?
Another friend reminded me for a while, that I have also been the one who stopped chemotherapy. And look what a result!, she still said.
Long story short. i went on the internet. Now it turns out (sjeess) that this combination of treatment is still in the research phase. On existing tumors! I don't have that.
On March 1, I have an appointment with my oncologist. And until then, I'm going to check out everything that this combination of post-treatment could bring me. So far, I haven't found anything in all the Dutch studies I've read, so I'm switching to English-language studies.
My paper with questions is growing.
What I want to know about the added value of radiation to my immune therapy. I don't get it.
If you know, read or hear anything, please contact me. This is super important to me.
